Supporting charity is
something that is very close to my heart. Before Joseph was born I
always felt charity was a nice thing to do. Charities, in my opinion
then, did work to help enrich communities and provide additional
services to people. Since having Joseph my whole view on charity has
changed. I know now there are things that would not happen without
charities. Specialist support services, research into medical
conditions, practical help for families, protection of the
environment and a myriad of other things would not happen without the
passion and drive of people who establish and work within charities.
I was invited by
Beautiful Blue to look at their new
t-shirts which are being sold to help Harrison's Fund . £5 from each shirt sold will
go to the fund.
Charities often start
from the heart. Families see a need and go for it, putting their
hearts and souls into a vision to make things better. Harrison was
diagnosed with Duchenne Muscular Dystrophy in January 2011.
Harrison's parents established the fund, because what Harrison really
needs is a cure, as do all people diagnosed with this condition, and
their families and friends. Readers of this blog will know that my
best friend Daniel has Duchenne Muscular Dystrophy.
The facts about
Duchenne are this. That boys (and there are some girls too) start out
healthy and as they grow the dystrophin in their muscles, the protein
that makes mucles work begins to deplete. The use of a wheelchair
becomes necessary, every muscle is affected including the diaphragm
so people with Duchenne Muscular Dystrophy will need assistance with
their breathing.
I don't dwell on this,
but the simple fact is that Duchenne Muscular Dystrophy takes the
lives of these boys, life expectancy is increasing but only because
of advances like ventilation. The condition hasn't changed, and I am
sure that Daniel would agree, the life with advanced Duchenne,
although can be enriching and wonderful, isn't an easy one.
The only treatment
available at present are steroids which can help buy some time in
terms of walking, but that is the only treatment available.
Harrison's Fund exists to raise money for research, because what we
need is a cure, or at the very least viable treatments other than
just steroids. There is hope and we know more about Duchenne Muscular
Dystrophy than ever before, we need more research, more money to
ensure that this can happen.
The t-shirts arebeautiful, the cotton is soft, the prints are so delicate, feathers forming a
heart. It doesn't contain a logo or any information about the
charity, so it's something you can wear for any occasion, choosing to
tell the story of the charity if you wish. The one I was sent would
look lovely with dress jeans and heels and a nice jacket, or equally
good for the gym, being pure cotton its comfortable to wear and
breathes nicely.
There is also a range
of jewellery and I intend to treat myself to a bracelet.
With Mother's Day
coming up this would be a lovely gift, and it gives twice, to the
recipient and also helps Harrison's Fund.
Great post Kylie, the T-Shirt looks really good on you too.
ReplyDeleteThanks! for this
ReplyDeleteinteresting article, it's really good.
Adobe
Support
This was an excellent post and was very insightful.
ReplyDeletestart a fundraiser on www.rallyhero.com
fundraising websites
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