tag:blogger.com,1999:blog-2098377761995034171.post8304477409516049557..comments2023-11-03T09:15:22.062+00:00Comments on Not Even a Bag of Sugar: Welcome to NICU - Advice for the New ParentsKykareehttp://www.blogger.com/profile/00316100979546486127noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2098377761995034171.post-15373715831286609662012-05-01T11:30:13.848+01:002012-05-01T11:30:13.848+01:00Thank you, that's a huge compliment. I wanted...Thank you, that's a huge compliment. I wanted to write something I wish I'd had too. I was lucky because I'd had some experience as an advocate and in the clinical world, so I had knowledge, but I had little support and really floundered, it was the loneliest time of my life and I hated his NICU stay, then when it was over fell into a crumpled heap. It's such a weird experience, its hard to comprehend unless you have lived it.Kylie Hodgeshttp://notevena.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-2098377761995034171.post-46554293354896129932012-05-01T11:20:38.369+01:002012-05-01T11:20:38.369+01:00I wish I'd had this when we went onto the unit...I wish I'd had this when we went onto the unit, I was ill and in a lot of pain and really closed myself down to keep myself sane. I'd had a tour of the unit, but the support worker was on holiday and no-one seemed to have time to help me. I wasn't encouraged to have a voice, no one even told me his care plan so I just sat there watching my wrinkled little old man. I didn't find out and Bliss or Tommy's until after he'd left the unit, but on the whole it was the most isolating and voiceless time of my life. I was lucky, Isaac didn't have any complications and just grew and developed...But I don't know if I would have had the information and confidence I needed to be his advocate had it been needed.AugustEverAfternoreply@blogger.com